Exciting News Update

I feel the need to share this …

Just had word back that Stella’s Calprotectin marker is less than 30!! I’m amazed. I think it could even be better than mine.

Again, to put it into some context: Stella’s first ever Calprotectin was around 1700; they admitted to stopping counting it because they thought it may reach 2000. It then went down to 70 ish after second lot of Modulen as well as Methotrexate on board. Climbed up a bit last year to 170 something, having been on Methotrexate and a gluten free/ dairy free diet. The hospital team were still pleased with this result; for someone with Crohn’s like Stella’s, they said anything less than 200 is satisfactory. Today: less than 30. (I feel like I’m broadcasting the charts!)

Anyway… Have we got sauerkraut to thank for this? Not sure we’ll ever know. But something is working, I’m so delighted, I feel giddy, can you tell?!

I was nervous about this result; Stella will still complain (to me) about occasional hip pain, which makes me worry, not knowing exactly what’s going on inside. We have had a couple of cases of loose stools recently, but clearly it’s all normal and nothing to worry about just now. The poor thing thinks we’re going to stop all the sauerkraut as a reward, hahaha.

So, there is hope, my fellow Crohn’s parents. I suspect the next thing should be a chat to the team regarding the drugs: could they be stopped? I know my husband is desperate, as is Stella. But, not for now. I know it’s still so vital that she grows and this inflammation doesn’t creep back up to scary level. I plan to relish in the joy just now that she is well, with virtually no inflammation going on. And any hip pain complaints just now I’m going to ignore — with confidence!